Resiliencia in parents of children with Autism Spectrum Disorder: a multifactorial approach
DOI:
https://doi.org/10.55040/educa.v3i2.69Keywords:
resilience, autism, parents, protective factors, vulnerabilityAbstract
The diagnosis of Autism Spectrum Disorder (ASD) in a child implies a significant impact on parents. Resilience refers to the ability to succesfully cope and adapt to this potentially traumatic situation and overcome the challenges of being parents of a child with autism. The objectives of this study are based on analyzing the factors that affect the resilience of these parents. To this end, a review of all current literature was carried out in the databases of Chocrane, Dialnet, PsycInfo, PubMed, Scopus, and Google Scholar. Through this research, it was found that resilience has to be understood, more than as as a personal trait, as a complex and dynamic process in which multiple factors are involved. At individual level: leve lof health, optimism, self-efficacy, sense of control, spirituality, cognitive interpretation of the experience, among others. At family level: acceptance, coping, and adaptation capacity of the family, severity and development of the symptomatology, cohesion, quality of the relationship, socio-economic situation, etc. At social level: support, both formal and informal. And, at community level: access to profesional and governmental support resources. Furthermore, it is emphasized the enormus relevance of parents and children having Access to formal and informal social support in promoting resilience. Finally, there is a call for further research on this topic and the development of assessment tolos and interventions (preventive and therapeutic) that conceive resilience as a complex, dynamicand multifactorial construct.
References
Al-Jadiri, A., Tybor, D. J., Mulé, C. y Sakai, C. (2021). Factor asssociated with resilience in families of children with autism spectrum disorder. Journal of Developmental & Behavioral Pediatrics; 42(1): 16-22. https://doi.org/10.1097/DBP.0000000000000867
Asociación Americana de Psicología (2013). Manual diagnóstico de los trastornos mentales (5th ed.) https://dsm.psychiatryonline.org/doi/book/10.1176/appi.books.9780890425596
Barker, E. T., Mailick, M. R. y Smith, L. E. (2014). Chronic parenting stress in mothers of adolescents and adults with autism: Vulnerability and resilience. En: Pate, V., Preedy, V., Martin, C. (eds.). Comprehensive guide to autism. Springer: Nueva York, NY. http://doi.org/10.1007/978-1-4614-4788-7_9
Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of intellectual disability Research; 51(9): 702-714. https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1365-2788.2007.00960.x
Becoña-Iglesias, E. (2006). Resiliencia: definición, características y utilidad del concepto. Revista de Psicopatología y Psicología Clínica. 11(3): 125-146. https://doi.org/10.5944/rppc.vol.11.num.3.2006.4024
Bekhet, A. K., Johnson, N. L. y Zauszniewski, J. A. (2012). Effects on resilience of caregivers of persons with autism spectrum disorder: The role of positive cognitions. Journal of the American Psychiatric Nurses Association; 18(6): 337-344. https://doi.org/10.1177/1078390312467056
Bolbocean, C., Rhidenour, K. B., McCormack, M., Suter, B. y Holder, J. L. (2022). Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID‐19 pandemic on family's quality of life and parent–child relationships. Autism Research; 15(12): 2381-2398. https://doi.org/10.1002/aur.2825
Chakurian, D. (2021). Resilience in family caregivers of adults with autism spectrum disorder: An integrative review of the literatura. Innovation in Aging; 5(1): 817-818. .https://doi.org/10.1093/geroni/igab046.2986
Cala, M. L. P. (2020). La salud desde la perspectiva de la resiliencia. Archivos de Medicina (Manizales), 20(1), 203-216. https://doi.org/10.30554/archmed.20.1.3600.2020
Casuso, M. S. y Almenara, C. A. (2018). Proceso de adaptación de padres y madres de hijos diagnosticados dentro del trastorno del espectro autista. Perspectiva de Familia, 3, 25-44. https://doi.org/10.36901/pf.v3i0.176
Chakurian, D. (2021). Resilience in family caregivers of adults with autism spectrum disorder: An integrative review of the literatura. Innovation in Aging; 5(1): 817-818. .https://doi.org/10.1093/geroni/igab046.2986
Ekas, N. y Rafferty, D. (2019). Resilience in Parents of Children with Autism Spectrum Disorders. En Volkmar, F. (ed) Encyclopaedia of Autism Spectrum Disorders. Springer: New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102418-1
Gagat-Matuła, A. (2022). Resilience and Coping with Stress and Marital Satisfaction of the Parents of Children with ASD during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health. 19(19): 12372. https://doi.org/10.3390/ijerph191912372
García-Franco, A., Alpizar-Lorenzo, O. A. y Guzmán-Diaz, G. (2019). Autismo: revisión conceptual. Boletín Científico de la Escuela Superior Atotonilco de Tula, 6(11), 26-31. https://doi.org/10.29057/esat.v6i11.3
Greeff, A. P. y Van der Walt, K. J. (2010). Resilience in families with an autistic child. Education and Training in Autism and Developmental Disabilities, 45(3): 347-355. https://www.jstor.org/stable/pdf/23880109.pdf
Grosso, M. L. (2021). El autismo en los manuales diagnósticos internacionales: cambios y consecuencias en las últimas ediciones. Revista Española de Discapacidad. 9(1): 273-283. https://doi.org/10.5569/2340-5104.09.01.15
Halstead, E., Ekas, N., Hastings, R. P. y Griffith, G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of autism and developmental disorders. 48(4): 1108-1121. https://doi.org/10.1007/s10803-017-3447-z
Hashimoto, N. K. (2020). Reclaiming joy: Findin resilience in families with children with autism (Doctoral dissertation). Ilions (Chicago): DePaul Univesity. https://www.proquest.com/openview/d70a8219d6b7fd31379b6302a8ed64a9/1?pq-origsite=gscholar&cbl=18750&diss=y
Ilias, K., Cornish, K., Kummar, A. S., Park, M. S. A. y Golden, K. J. (2018). Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in psychology. 9, 280. https://doi.org/10.3389/fpsyg.2018.00280
Kavaliotis, P. (2017). Investigation of the correlation of family resilience of parents with a child with autism spectrum disorders, parenting stress and social support. International Journal of Psychological Studies. 9(2): 1-15. https://doi.org/10.5539/ijps.v9n2p1
Kavaliotis, P. (2017). Resilience of parents with a child with autism spectrum disorders and factors for its potential enhancement: Family income and educational level. Journal of Educational and Developmental Psychology. 7(1): 188-199. https://doi.org/10.5539/jedp.v7n1p188
Kavaliotis, P. (2017). The importance of the sex of the parents and of the sex and age of the children with autism spectrum disorders to family resilience. Journal of Educational and Developmental Psycholgy. 7(1): 155-168. https://doi.org/10.5539/jedp.v7n1p155
Kuhn, J. C. y Carter, A. S. (2006). Maternal self‐efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry. 76(4): 564-575. https://doi.org/10.1037/0002-9432.76.4.564
Lawhorn, J. C. (2019). Exploring Parental Resilience and the Autism Spectrum Disorder Using the 2011 National Survey of Children's Health (Doctoral Dissertion). Texas Woman's University, Texas, Estados United States https://twu-ir.tdl.org/bitstream/handle/11274/12154/LAWHORN-DISSERTATION-2019.pdf?sequence=1
Lima-Rodríguez, J. S., Baena-Ariza, M. T., Domínguez-Sánchez, I. y Lima-Serrano, M. (2018). Discapacidad intelectual en niños y adolescentes: influencia en la familia y la salud familiar. Revisión sistemática. Enfermería Clínica, 28(2), 89-102. https://doi.org/10.1016/j.enfcli.2017.10.005
Jiménez-Pina, E. (2016). Resiliencia en padres y madres de niños con trastornos del espectro autista (Doctoral dissertation). València: Universitat de València. http://hdl.handle.net/10550/55439
Qin, X., Qu, F., Li, Y., Pang, Y. y Zhang, L. (2020). Research on the correlation between parents' posttraumatic growth, mental resilience and family function in children with autism spectrum disorder. Chinese Journal of Practical Nursing. 36(18):1400-1404.https://pesquisa.bvsalud.org/portal/resource/pt/wpr-864602
Rosado, I. S. M., Moreira, M. V. L. y Mieles, K. P. M. (2020). Funcionalidad familiar y su relación con el área sensorial de los niños con trastorno del espectro autista. Polo del Conocimiento: Revista científico-profesional, 5(10), 22-36. https://dialnet.unirioja.es/servlet/articulo?codigo=7659436
Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E. y Moya-Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in developmental disabilities. 35(3): 686-695. https://doi.org/10.1016/j.ridd.2013.12.007
Santoso, T. B. (2022). Factors Affecting Resilience of Mothers of Children with Autism Spectrum Disorder. International Journal of Innovative Science and Research Technology. 7(12): 502-515. https://ijisrt.com/assets/upload/files/IJISRT22DEC334_(1).pdf
Sarriá, E., Brioso, Á., & Pozo, P. (2020). The families of people with autism: they also mattered to him (Las familias de las personas con autismo: ellas también le importaban). Journal for the Study of Education and Development, 43(4), 857-871. https://doi.org/10.1080/02103702.2020.1802152
Schwartzman, J. M., Millan, M. E., Uljarevic, M. y Gengoux, G. W. (2021). Resilience intervention for parents of children with autism: Findings from a randomized controlled trial of the AMOR method. Journal of autism and developmental disorders. 52(2): 1-20. https://doi.org/10.1007/s10803-021-04977-y
Torres-Lista, V. (2019). Impacto psicosocial del diagnóstico del Trastorno del Espectro Autista (TEA) en los principales cuidadores. Investigación y pensamiento crítico, 7(1), 27-39. https://doi.org/10.37387/ipc.v7i1.13
Watson, L., Hanna, P. y Jones, C. J. (2021). A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry. 26(3): 734-749. https://doi.org/10.1177/13591045211007921
Yaacob, W. N. W., Yaacob, L. H., Zulkifli, M. M. y Muhamad, R. (2022). A Journey towards Resilience: Coping Strategies Adopted by Parents with Children Having Autism Spectrum Disorder in Northeast Malaysia. International Journal of Environmental Research and Public Health. 19(4): 2458 https://doi.org/10.3390/ijerph19042458
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 EDUCA International Journal for Educational Quality
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
https://creativecommons.org/licenses/by-nc-nd/4.0